While individual genetic disorders are rare, it is thought that there are currently more than 6,000 diagnosed disorders and new disorders are being identified every day. It is estimated that 1 in 25 children is affected by a genetic disorder. This means that in the UK, 30,000 babies and children are newly diagnosed each year and more than half a million children and adults are living with a genetic disorder.
They aim to be a source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them, by bringing together everyone’s combined experience in a place it can be shared.
Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.
http://www.geneticdisordersuk.org
How Rare? 