A month ago today was my last day employed. The fatigue got to much for me to manage to work even a little bit so I had to stop.
Those closest to me have been so supportive of my decision knowing how much I have struggled the last few months and how stopping work goes against all my beliefs and independence issues.
Others have tried to be supportive but missed the mark a bit with their comments.
So here’s something to remember. If those of us with chronic illness have to give up work it is not something we are choosing but is something we have to do to look after ourselves. We do not enjoy not having something to occupy our brains or distract us from how we are feeling.
IT IS A NECESSITY NOT A CHOICE
I was lucky to work for an organisation that let me work the hours I did but many part time jobs still require 20 or so hours a week which for a lot of people with chronic illness is too many. So before you judge us for not working or say how lucky we are, think about our entire situation.
How Rare? 