World PI Week 2019 began today. This awareness week may not mean much to so many of you but to those of us with primary immunodeficiencies it is an important week of the year; a chance to raise awareness of a condition we live with everyday.
As it happens today was the day I had to do my infusion. This occurs once a week and is an infusion of other people’s antibodies to keep me healthy. For me and so many others this product is our “liquid gold” keeping us well and healthy.
Each week I infuse 80ml/12grams via two needles over 1 hour.
My product is Subgam and I infuse subcutaneously into my stomach
Some patients choose to infuse every few weeks into a vein more often in a hospital.
I hope that explains my weekly treatment and please do spread the word about primary immunodefiencies both this important week and the rest of time.
How Rare? 