Jeans for Genes occurs each year and raises money for children and awareness of genetic disorders.
Individually genetic disorders are rare but combined they are common.
As several of my conditions are caused by genetic mutations and having seen how genetic disorders affect children growing up this is a cause I support.
Some genetic disorders are so rare there is only a couple of children affected by certain disorders in the UK so it is hard for the organisation’s to get any support.
Jeans for Genes helps organisations host family days, symposiums, learning opportunities for families and carers giving families a chance to meet others that are also affected.
So on the 21st September don your jeans and help children with genetic disorders.
How Rare? 