Last week I turned 30!! I never thought that would happen so I decided to celebrate in style.
Then it snowed!
I freaked out but still 70 people made it from Cornwall and Devon, Yorkshire and Kent to my afternoon tea party with a bouncy castle, soft play and face painter.
It was amazing to see everyone and I did get quite emotional because of it.
So to all my family and friends who made the effort to come and celebrate with me,
Thank You.
I may have slept most of the hours since then, and on Monday I kept weeping from tiredness but the joy of being able to celebrate such a big birthday was worth it.
Instead of presents I asked for donations to Primary Immunodeficiency UK as they are so helpful to me, my boss there is so understanding which is needed for dealing with fatigue.
Almost all rare disease patients have their own battle to fight and mine is tiredness. We all want to still be working and PID UK have made that possible for me.
The biggest battle of all is to make it to your next birthday and I did and I did in STYLE!!
How Rare? 