Today I had a head mri with contrast. If you’ve never had contrast before it feels a little like you’ve wet yourself, all warm and weird.
A friend of mine had an mri with contrast and made the nurse check she actully hadn’t wet herself.
I’ve has MRIs a lot over the last 5 years or so.
One summer I was in hospital and an Endocrinologist noticed I had nystagmus so ordered a head mri to be safe.
That evening a neurologist popped in to say it
Had shown some abnormalities which might indict MS or Lupus or any other condition
She told me she was going to have another MRI with contrast ordered for me and she’d be back the following day.
She never came back leaving me terrified.
That night my sister was in the pub and dropped everything to come and visit me, called my parents who were in Cornwall (I’d insisted they go) and sat with me whilst I worried.
The next day I had my second MRI but with contrast and decided that as my main specialist was in Oxford I wanted to see neurology there as well.
And so began my ataxia journey! 
How Rare? 