I’ve lived my entire life with a rare disease and now I’m living with a second one. Growing up the hospital was my second home and I felt it was time to share my story. Over the coming days/weeks/months and years I will slowly be sharing parts of my life that have shaped how I live and manage.
This blog is not to make you feel sorry for me but to raise awareness of rare and genetic disorders. Raising awareness leads to better understanding and treatment from others in both a medical capacity and a day to day capacity.
How Rare? 
Good on you Hannah for starting this blog. So interesting and I look forward to reading more. I didn’t know about Antaxia. You are such a strong and brave woman!
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